ASAP (American Syringomyelia & Chiari Alliance Project) is a non-profit organization established in 1988. They are dedicated to improving the lives of individuals affected by Syringomyelia, Chiari Malformation, and related disorders. Through research, education, and support, ASAP aims to find a cure for these conditions. They provide comprehensive resources for patients, including a patient handbook, Q&A for newly diagnosed individuals, and information on various related disorders. ASAP also offers support through local and online support groups, telephone support, and personal stories. Additionally, they conduct research and provide grants to support ongoing research efforts.
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