The Program for the Study of Neurodevelopment in Rare Disorders (NDRD) is dedicated to assisting children with rare, inherited neurological conditions and their families. Through evaluation, education, research, and intervention, NDRD offers a range of services including educational interventions, therapy, medication management, and equipment recommendations. Their primary objective is to enhance the quality of life for children with rare disorders and support their optimal development.
NDRD conducts various research studies and collaborates with organizations like the Legacy of Angels Foundation to advance treatment development and clinical services for conditions such as Krabbe disease. They provide comprehensive evaluations and ongoing support to families, ensuring access to medications, local services, and insurance approvals. Generous donations from the Rifton Company have enabled NDRD to offer families the opportunity to try out adaptive equipment during clinic visits, facilitating faster progress in rehabilitation therapy and improved outcomes.
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