The C S Patient Education Foundation, based in Wexford, PA, is the largest private funder of Chiari research, dedicated to raising awareness and providing resources for individuals affected by Chiari malformation. Their extensive library offers a wealth of information, including a patient's guide, printable handouts, frequently asked questions, and personal stories, while their research program, Chiari1000 Project, aims to advance understanding and treatment options for this neurological condition.
With a focus on pediatric Chiari, the foundation provides educational materials for children and their families, taking Chiari to school and offering pediatric handouts. Through community fundraising efforts and events, they encourage individuals to get involved and support their mission of bringing hope to those affected by Chiari. The C S Patient Education Foundation is committed to making a difference in the lives of Chiari patients and their loved ones.
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