The Fanconi Anemia Research Fund, based in Eugene, OR, is a non-profit organization dedicated to advancing research and finding effective treatments and a cure for Fanconi anemia, a rare genetic disorder. They also provide education and support services to affected families worldwide.
With over 1,500 registered families and $32 million invested in research, the organization has identified 23 FA genes and is committed to improving and extending the lives of those diagnosed with the disease. Through funding research, providing educational resources, and organizing events, they aim to prevent and eliminate the primary causes of death and disability in people with Fanconi anemia.
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