The Global Foundation for Peroxisomal Disorders (GFPD) is a non-profit organization based in Tulsa, OK, dedicated to improving the lives of individuals with peroxisomal disorders. Founded in 2010 by parents Shannon Butalla and Melissa Gamble, the GFPD brings together families impacted by peroxisome disorders, funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.
With a mission to support individuals with peroxisomal disorders, the GFPD serves as a valuable resource for families who have received a diagnosis in the Zellweger spectrum, including Neonatal Adrenoleukodystrophy (NALD) and Infantile Refsum Disease (IRD), as well as single enzyme disorders. Through their connections with medical and scientific professionals and family support networks, the GFPD provides a platform for collaboration and support, connecting over 300 families from 30 countries. Their biennial Family and Scientific Conferences bring together families and professionals to collaborate on improving the lives of patients with peroxisomal disorders.
Generated from the website