The Creutzfeldt-Jakob Disease Foundation, Inc. is a registered 501(c)(3) non-profit organization based in Fairlawn, OH. They provide support, resources, and education for individuals and families affected by Creutzfeldt-Jakob Disease (CJD) and other prion diseases, offering a HelpLine, referrals, support groups, webinars, and an Annual Family Conference.
Through collaboration with scientists, clinicians, medical centers, and international patient associations, the foundation aims to make a difference in the field of prion diseases. They also offer a Research Grant Program and have earned a 4-Star Rating from Charity Navigator. Their mission is to support those affected by CJD and raise awareness about these rare, fatal brain disorders.
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