Taylor's Tale is a Charlotte-based organization dedicated to advocacy and research for rare diseases, specifically Batten Disease. Through their work, they aim to raise awareness and support for individuals and families affected by these conditions.
Founded in 2006, Taylor's Tale conducts research, provides resources, and engages in advocacy efforts to make a positive impact in the rare disease community. Their blog and fundraising initiatives further contribute to their mission of driving progress in the fight against Batten Disease.
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