Law Doctor Benjamin C, 859 Crestview Ave, Valley Stream, NY 11581, US

The Dysautonomia Foundation is a leading organization in the treatment and research of Familial Dysautonomia (FD), a rare genetic disorder affecting the autonomic, sensory, and peripheral nervous systems. With a focus on improving the lives of those living with FD, the foundation funds groundbreaking scientific research, provides medical care, social services, public education, and advocacy, ultimately striving to make life better for individuals affected by FD. Over the course of seven decades, the Dysautonomia Foundation has achieved significant milestones, including funding research that led to the discovery of the FD gene, endowing professorships for FD research and treatment at NYU School of Medicine, increasing the life expectancy of those born with FD from 5 to 40 years through funded treatments, advocating for required FD screening for at-risk families, and establishing the world's only two treatment centers exclusively dedicated to FD care and research.Generated from the website