The Down Syndrome Infant Brain Imaging Study is a groundbreaking five-year research project funded by the National Institutes of Health (NIH) that aims to understand early brain development in infants with Down syndrome. By recruiting 152 families with infants diagnosed with Down syndrome, the study involves developmental testing and MRI scans at 6, 12, and 24 months of age, with no sedation or radiation required. Study sites across the United States, including the University of Washington, Washington University School of Medicine, Children's Hospital of Philadelphia, and the University of North Carolina, arrange travel and visits at the convenience of the participants, who can participate at no cost.
This NIH-funded study seeks to improve outcomes for individuals with Down syndrome by gaining insights into very early brain development. In addition to families with infants diagnosed with Down syndrome, the study also requires infants without Down syndrome for the control group. Participants receive reimbursement for travel expenses, meals, and incidental costs, as well as a participation fee and a results report summarizing their visit. The study's ultimate goal is to develop innovative treatments based on a comprehensive understanding of brain development in babies with Down syndrome.
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