The PHACE Syndrome Community is a non-profit organization based in Dunwoody, GA, dedicated to supporting individuals and families affected by PHACE Syndrome, a rare condition characterized by the association of large infantile hemangiomas and birth defects in various parts of the body. Their mission is to build a community, raise awareness, disseminate medical information, support research, and provide a platform for individuals and families to connect and find support.
Through their efforts, the PHACE Syndrome Community aims to improve understanding and knowledge of PHACE Syndrome, facilitate access to resources and medical advancements, and contribute to ongoing research in the field. They are committed to making a difference in the lives of those affected by this challenging diagnosis.
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