The Proteus Syndrome Foundation is a 501c3 not-for-profit organization based in Colorado Springs, CO, dedicated to improving the lives of Proteus patients by funding AKT1 research and providing family support through education and networking with other families and medical professionals.
The foundation focuses on raising awareness about Proteus syndrome, a rare genetic disorder, and offers resources such as clinical trials, genetic testing facilities, and videos to assist patients and their families in understanding and managing the condition.
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