RARE-X is a non-profit organization based in Aliso Viejo, CA, dedicated to transforming rare disease research and support for patients. They believe that by empowering rare patient communities to securely gather and share their data with researchers and companies worldwide, they can accelerate progress and promote diversity, equity, and inclusion in research across over 10,867 rare diseases.
Through partnerships with rare disease communities and the use of proven technology, RARE-X aims to provide a common platform for data collection, structuring, and responsible sharing. Their goal is to accelerate diagnosis, disease understanding, and the development of future treatments and cures, while respecting the ownership and consent of patient data contributors.
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